Wrapping Up First Descents; A Trip to NYC on the Horizon


Our girl departs Albany this morning, and we'll be seeing her late tonight. I can't overstate how excited I am to hug her, and to see that smile (in person) that reminds me of how lucky I am to have such an extraordinary daughter. 

While we still haven't gotten the complete recap of her time in the Adirondacks, every indication is that our girl thoroughly enjoyed pushing herself beyond her comfort zone, testing her strength and stamina, and coming out of it realizing she's capable of more than she believed. Guessing that she's tired, but proud of what she tried, and what she accomplished. 

Additionally, we're really hopeful that she was able to connect with some of the fellow campers and staff members. 

Abi is loved so profoundly, so completely. There is no doubt of that. I also believe that Abi is so buoyed by the encouragement she gets from her entire Army. So often we hear her talk about the incredible feeling of support she gets from her care team. And while we can all relate to what she is experiencing, we simply aren't in the same boat. We can't fully experience the ride she's on in the same way that she's experiencing it. 

But many of the folks at First Descents with her have been/are in that same boat, and we're hopeful that she was able to establish a relationship (or two) with somebody who can help to guide her, or who can simply share the ride a little more intimately than we can. I really believe that would be the most important result of the trip to the Adirondacks. 

Abi has been out of cell phone range for the past few days, so we're light on details. Look for more on FD in the coming days.

The Next (Big?) Thing

And now, we turn our attention to the next battle. Instead of returning to Virginia tonight, Abi will be making her way toward NYC, where we'll be meeting up with her for a consultation with one of the neuroendocrine cancer specialists at Memorial Sloan Kettering. 

On Thursday, we'll be meeting to discuss their recommendations for a way ahead. It's entirely possible that, as one of the leading cancer centers in the country, they will have access to a wider array of trials and other treatment options.

For you prayer warriors - what we need now is insight and wisdom for Dr. Saltz and his team. As I mentioned before, there is no standard playbook for Abi's disease. It's too rare. So when Dr. Saltz considers Abi's particular case and the treatment options that are available, it will take some extraordinary perspective to determine which are likely to have the best affect. 

Not sure when we'll have a clear way ahead - it may take some time - but please keep Abi and John in your prayers, and know that we'll share any news as we get it.

Thanks to all for your continuing determination, love, and encouragement.

In love,